Corporate Citizenship

Previous
Next

Orphan Disease Program

Program Description

CURRENT REALITY - In the Philippines, a disease is considered rare if it affects less than 1 in every 20,000 individuals. Most of the rare diseases or disorders are genetic, progressive, debilitating, and often times life-threatening.

Children who are born with and suffer from rare diseases are "orphaned" by society. They suffer from social abandonment because of the lack of a support system. Medical help is elusive under the conditions of the country's health program. Currently, the nature of most of this illness is hardly known due to lack of information. Only a few medical professionals in the country are aware of these disorders and know how to diagnose and address these conditions properly.

Because the nature of rare disorders are long-standing, life threatening, progressive and require multidisciplinary care, available treatment, therapies, and food supplements likewise require life-long administration, the cost of treatment and care are way beyond the means for all families.

(Karen Panol PSOD program manager)

Mead Johnson Nutrition Philippines, Inc. has been supporting patients with rare diseases (metabolic disorders) for the past 20 years. MJN provides patients with Maple Syrup Urine Disease (MSUD), Phenylketonuria (PKU), and Methylmalonic Acidemia (MMA) with specialized MJN milk formulas from the United States for free.

Program Benefits

For patients with the above mentioned conditions, the special formulas MJN provide them are the only nutrient they can take. To date, there are 42 patient beneficiaries of the program. One of these patients have been taking the formula for the past 20 years.

Family members of the beneficiaries are very grateful for the support because without it, their children would not be able to survive.

Partners

National Institute of Health - Institute of Human Genetics

The Institute of Human Genetics of the National Institute of Health is the leading partner in this program. The institute reached out to several private institutions in the past to solicit support. Of the many companies they contacted, only a handful responded positively. MJN was among those to respond positively to the call to help.

Philippine Society for Orphan Disorder (PSOD)

Supporting the patients and their families is an organization composed of other families of children with rare diseases, doctors and other health care professionals, and committed individuals who have taken up the cause for orphan diseases.

Together with the IHG, the PSOD provides assistance and other support to the patients and their families. It commissions itself to be the central networking, advocating and coordinating body for all viable efforts to sustain the "right to life" of individuals with rare genetic disorders.